• restingboredface@sh.itjust.works
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    3 months ago

    So maybe this is an unpopular opinion but since there isn’t a cure I don’t think I want to know. If I’m not symptomatic why put myself and my family through more time just waiting for it to appear.

    • TSG_Asmodeus (he, him)@lemmy.world
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      3 months ago

      I just wanted to say we didn’t know my father had early onset Alzheimer’s, and I never got to say goodbye to him before COVID took him from moderate to severe.

      Knowing is good, because you can make arrangements and your family doesn’t find out by you taking the car out and never coming home because you drove out of the city, or got into an accident.

    • AA5B@lemmy.world
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      3 months ago

      There are medicines that can delay it a bit, and work better the earlier you start taking them

      There’s tons of research toward this and they may give something. Wouldn’t you want to know to jump on every study/research?

    • GBU_28@lemm.ee
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      3 months ago

      There are treatments to delay it, and generally they work better before you are fully impacted.

      Also it could help you grapple with it, and know when to more gracefully simmer down certain activities (like traveling alone, managing your own money, etc)

    • Ech@lemm.ee
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      3 months ago

      I get the sentiment and more or less agree with you, though if there were even a successful treatment to delay or lessen its effects, I’d be down to get going on that early if detected.

      • restingboredface@sh.itjust.works
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        3 months ago

        Oh yeah absolutely. But aside from random studies that all “show promising possibilities for future treatments” right now I don’t know that there’s a good outlook for anyone even if they get diagnosed today.

        But if that changed I’d be first in line for the test.

        • AA5B@lemmy.world
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          3 months ago

          Other way around. If the test indicated a problem, you could try to jump on every study that may show promising results

    • cybervseas@lemmy.world
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      3 months ago

      Save money for treatment and long term care? Set up health insurance and trusts to help the people you care about be okay?